I have been suffering from the extreme effects of this surgery these last couple of days. It sure as hell hasn't been easy and that's a total understatement. I still have yet to get a full (in over 4 nights) night's sleeps and this has been taking a toll on me quite a bit. I'm surely sweet Jayne all the way and now I have been bitch Jayne.
I have only been able to take maybe 20 - 30 minutes naps all night long because my vitals have to be taken every hour on the hour because of being on the PCA pump for pain. This is the reason I am unable to sleep at all throughout the night; I'm simply not allowed to or at least that's what it seems. I have to be awakened no matter what and have my vitals (blood pressure, oxygen, and temperature) taken every hour on the hour even though nothing seems to change at all in any of them. How incredibly annoying is this? I really do need to sleep or at least I thought that one should be able to for at least 5-6 hours with out being interrupted; but NO! NO! NO!, not here at Kaiser, I have to have those vitals taken every single hour.
Oh and the lights must be bright, bright, and very bright; so much so that they must be taken when I am fully awakened. OK it sucks donkey shit and every kind of shit there is. I still can't get over that I am not allowed to get a full nights sleep here but if I want to be rid of pain; I have be awakened no matter what.
During one of my 20 minute naps I awoke dreaming that I was making my honey his morning cup of coffee, then his travel mug of coffee, his peanut butter and jelly sandwich and of course the rest of his lunch. How I do miss being at home, being helpful and just doing all the things that shows him just how much I really do love him and of course all those little ways of showing him exactly how much I love him; that I appreciate him more than anything in the world and that I'm extremely blessed to have the most wonderful man on earth. I can't wait to go home. I was pissed off to get awoke from a dream like that!
Well today, I had a huge day of progress. It started out totally and completely miserable with me being totally angry with all the nurses that kept on waking me up all through out the night; I would finally get to sleep and then I was awakened for my temperature taking, that stupid sweaty blood pressure thingy and that stupid finger thingy that measures my oxygen. How necessary is it to have to do this every hour on the hour and sometimes I know it was taken every half hour at times. What the hell? I must have been awoken at least 20-30 times. I was so pissed off and angry for not getting any sleep. No one would allow me to sleep!(
OK back to my progress; I was sweaty and miserable in my bed, hurting and not at all feeling all that great; I felt like total shit; I was grumpy as hell for being awoken all night long, my throat hurt from the stupid NG tube, the pee hole bag was really starting to annoy me and I wanted it out right away. Then there are those little foam baggy velcro things that wrapped around my leg; well those were really itching my leg (those things help for circulation). I was so incredibly uncomfortable and a total freaking mess and I must have been a total head case too being with out so much sleep in so many days.
A nice nurse came in a few minutes later to help me get out of bed ad get seated in the bathroom so that I could give myself a good little washcloth bath, then change into my gown. While I was washing myself off, she changed my bed. After I was dressed, I decided to get up and go for a t walk in hopes that the Foley Catheter would be removed. I walked a full 2 laps around my hospital floor at around 11:30am. I felt accomplished at least and was able to get some help so that I could climb back into my clean bed and try to attempt to get some sleep.
After I was just a few seconds from REM sleep, in walked a nurse to check my vitals. That stupid little cart was the last thing I wanted to see. She turned on the brightest of the bright lights and I was totally floored more than anything, I felt exactly like grabbing that whole little cart and just tossing it out of my room into a million pieces. I so wanted to do that. I was totally and completely pissed off at her. What the FUCK I thought to myself. "What the FUCK!" I was almost there! I literally was almost completely asleep and then I was robbed of that relaxation moment of sleep; the most important one; having a good dream with my honey on vacation. Well I put up with her shit and then just gave up on trying to sleep anyway. I must have made her feel like shit but she was only doing her job. I asked her; "am I the patient who is not allowed to sleep?" "Am I just not allowed to sleep at all here?". "What the hell? I have not slept in 4 days and I was just about there; you didn't even knock; you just turn on the brightest lights you can find and I feel you did this on purpose; just to annoy me!" Oh GOD I was so pissed at her.
Her English was so bad that she didn't understand me at all so I had to repeat myself like 3 times. I asked her "I know I'm forbidden at night to sleep but what in my health is so bad that I am not allowed to sleep?" What good is this doing me to not allow me to sleep? What are you guys doing to me? I went off and just lost it. I just wanted to know why am not allowed to sleep; why do I have to keep getting woken up? I had just had my vitals taken just before I went on my 15 minute walk; so it had to have been like 40 minutes later. I just wanted some peace and quiet and to sleep and why am constantly getting woken up? "Can you please just give me 3 hours of peace and quiet at some point today? "I would very much like to sleep and "Please"? "Can I please, please, please get some sleep, some peace and quiet? Can you please just leave me alone so that I can do that?" I lost it but I did apologize to her and tell her "I know you are just doing your job but for me this is really annoying and I don't see why my vitals have to be taken so incredibly often; can you please just lay off for just a few hours so that I can at least sleep?"
Getting all worked up worked up did nothing for me to even attempt to go back to sleep. I was completely out and just totally pissed off. Don't get me wrong, I am a very good person with a heart of gold, I would give the shirt off my back to help anyone in need but if I don't my sleep, I can turn into a seriously mean ass bitch. I guess I just can't handle doing with out my sleep. I don't feel that asking for sleep is like asking for all the gold in the world and that's exactly what it has been seeming like lately. Sleep for me now is exactly like gold. If I can get it; I'm totally happy; if not I guess I'm just a bitch. "Oh please don't let Jayne have her sleep; she might die in her sleep if she does."
It was such a good thing that my friend Amy stopped by today. Check out these beautiful flowers in the cute little vase she got me. We picked the rosemary from the garden. I was so happy to see her. She had stopped by last night and what really touched my heart is that she drove all the way from Santa Barbara just to see me; just to see little old me!)
She sure cheered me up and it was so nice to be able to spend the rest of the day with her. It was such a nice girly day!) We mostly sat in my room talking about old times and about the way things used to be in each of our lives; all the traumas and things that we have both gone through and that has strengthened us and made us each stronger women. Neither of us have kids and nor do we ever plan to; our ideal kids are our pets and I guess that's what makes our friendship so special. It helped quite a bit to talk and get feelings out that I guess I had held in for all these years; yes we even cried together.
It was such a good visit; Amy and I had not always been close but this visit really opened my eyes and heart to her even more. This is just another example of how cancer changes your life so much and how you see the people in your life. I have also lost touch with many whom I thought were good friends but then when they found out I had cancer; they wanted nothing more to do with me. Maybe I will see them again in the future or maybe not. It doesn't really hurt my feelings that much but I'm glad that I now know who my true friends are in life.
We decided to go on a walk for a little bit but I want to first get rid of this stupid Foley Catheter before going on a walk; I couldn't imagine walking and then having to sit down with that stupid thing up my puss; I just didn't want to try walk again with it in. Its not at all comfy so I called my sweet nurse Ershod (he really is a great nurse) to come and take it out. I pushed the call button and he came practically right away. It think he maybe one of the best nurses at arriving faster than most nurses.
What an awkward procedure; I was a little bit shy of him having to see my little puss but I really wanted that thing out; puss or no puss. I had to take a deep breath and breath out as it came out. Wheeewwww, that was a tad bit uncomfy! I thought it would hurt far worse but thankfully it was gone. Me and Amy clapped our hands in joy and I was so incredibly relieved. We could now go on our walk! Yippee!
We decided to go outside for a little walk in the Rosemary garden. It was so nice and peaceful to be able to sit outside to relax and to talk some more. That's one thing about us is that we never ever run out of things to talk about. I'm so happy for her that she has finally found the love of her life. He seems like such a great guy with a heart of gold. I can't wait to meet him. We both have great men to be proud of and that will stand by our sides no matter what; excellent me who love us no matter what.
It was finally time to go back inside (my IV battery was beeping and about to die), so we went inside my room and talked some more. Not long after, she finally got to meet my sweet little Blue Belle.
I wished I would have thought to take a photo of both of them together; but instead I have this shocking photo of my newest scar. See, I finally got the bandage removed from my surgery so that you can see all 14 staples. It's so trippy that the cut is just above my belly button. I'm so glad that it is because I was afraid that I have finally lost beloved little belly button. I know of so many woman who have already lost theirs and despite all the cuts and scars on my belly button (it's been cut there 5 times), it's still a pretty and cute little belly button that I will proudly sport in a bikini. I guess I'm kinda sick that way in that I don't mind showing off my battle wounds. I'm so proud of my self that I have survived so much. I just want the world to see just how tough I am and that if they too get diagnosed with this dreadful disease; they too can fight it as I have; stand strong, stand tough and beat it!) If you have that self determined will to live; you can beat it.
I also accredit medical cannabis for my prolonged survival. So dam you politicians who are dumb enough to think that this incredibly miracle plant has no medical value; Dam you! Yes, I'm not a big fan of stupid greedy, dishonest politicians who have never walked in my shoes and feel they must decide what is best for me and that they have a right to end my life just like that.
This plant has helped sustain me and has kept me alive in so many ways. Even though I am not on it now; I will be when I return home to get stronger and stronger. I will utilize this wonderful plant in order to help stimulate my appetite, keep me hydrated and of course help me with much needed pain relief.
Well tonight after I got my new bag of milk food, I am now getting a bag of blood; yes a blood transfusion was needed from this surgery. I had been loosing some color in my skin, my energy wasn't so good and of course the lack of sleep I'm sure had something to do with a lot of this. They had to unhook my PCA pump for pain for a whole 3 hours and in case I do get any pain, I will have to take a shot in my ass of morphine. It was either that or get another IV in my left arm which is totally and completely out of the question. I'm tough, I can handle 3 hours with out pain meds and if not, get that shot in my ass!)
As for tonight's plan, I was able to talk with a head nurse about adding some sleep to my schedule. (Sorry you have had to read on and on and on about my bitchiness and my stupid complaining about the dam sleep). Well I get to sleep uninterrupted tonight from 12am - 4am!) I'm so stoked! I will have to make sure that I take something to sleep since I can't sleep all by myself with out anything. Peace and love to all and more updates to come!)