WARNING: Some of the Content here may be Objectionable to some. I have this blog labeled as "Adult Only" as a common courtesy for those who may easily be offended by Adult topics such as the Truth, Down to Earth topics, realities of living with Ovarian Cancer and/or any life threatening disease that goes along with it; Sexuality, Medicinal Cannabis, Profanity, and of course plenty of unpleasant body functions are also discussed here. This is a very tough battle for which I don't intend to hold anything back on what I am facing.

This blog is very personal and comes from the heart of a real fighting cancer patient who wishes nothing more than to live for all of those I love my own will to live, and my love of life. While sometimes I might be on heavy medication (prescribed by my doctor) and occasionally I might write about things or subjects that one may never even think about or consider; so please consider that as well. Yes; whacked out things might even be found here; but I mean everything in all good intentions.

This blog is not at all intended for the faint hearted, those who lack a sense of humor, have no idea what down to earth means, greedy mean people, and/or those who don't know how to share the world with others, and especially those who are unable to easily put themselves into the shoes of others. This blog is mostly about my journey of living my life in the best ways that I can under the Golden Rule and appreciating all of the GOOD KHARMA that comes my way! Never take anything in this world for granted; especially family and friends!

Sunday, March 22, 2009

Infection in my JP? & another Blood Transfusion..

I had a better night on Friday night/Saturday morning with the pain and the Epidural being taken out really made a difference. I was still getting some back spasms but it was nothing like having that Epidural; my pain level is now maintained at around 6-7 and yes getting used to the pain.

My doctor was concerned about some infection coming out of my bowel from one of the JPs (a brownish goo was coming out of one of the suction thingys) so we doubled up on the antibiotics and then turned back on the feeding tube.

I did everything I could (Doctor's orders) to get better. I used this Triflow Device of which there is absolutely nothing at all on the internet about this device so I will explain it.

This Triflow device is supposed to help strengthen my lungs after after having this major, major surgery and preventing my lungs from callapsing.

I am to use it 10 x's a day and to keep the breath even. You suck in air and try to keep little yellow plastic thingy in the Happy Face area. My honey had me doing it all wrong in the beginning and was even cracking whips to get me to do this every 5 minutes = 10 breaths. He felt so bad when he found out this wasn't so. I wasn't really showed how to do this thing but I figured it out on my own and therefore feel that I am getting stronger.

On Saturday, I had the most wonderful sweet nurses ever; can't ever remember their names!( She was amazingly supportive and at 7am I tried my best to get up for a walk. I didn't understand it, but I did a tiny little block lap (maybe 20ft) and I was exhausted. I had no energy and completely out of breath.

Then the old OBGYN doctor arrived shortly after to check on me. Now a couple of years ago, I had an anxiety attack before when he had arrived as guest speaker to my Cancer support group. Most of us were all new to the treatments and diagnosis just wanted to have faith and hope to beat this disease and he basically got in front of the room and practically spit on all of us. He basically told all of us that we would all die in just a few short years from this disease and spoke of all the unsuccess stories of curing this disease. I was appalled at how negative he was and still is. Back then I was hyperventilating and crying when I got home from my meeting and I never went back to another meeting ever again.

Anyway, this same old doctor came into my room and didn't recognize me right away until I told him I was a 6 year survivor and who I was. He remembered me and I am so incredibly thankful that he has never worked on me and that he was never my doctor. My ashes would already be spread on Homewood Mountain years ago if he was. I'm so grateful that he isn't. He really does have the most horrible bedside manner of any doctor I have ever met. He had this air about him when he came to see me and it was superior and not in any words did he did say but it was his reactions as if I were on my death bed but it just appeared that way.

I told him my surgery was great and he interrupted me to tell me that I had a bowel infection and something else, but once he left the room; I started panicking and crying and couldn't get a breath in. I pushed my call button and the nice nurse along with another one came in and comforted me, giving me oxygen and then an Ativan to calm me down. They both just held me in their arms and comforted me until I calmed down.

I did try to walk around again after that anxiety attack and then I napped for a couple of hours. I also felt as if I had coughed up a few fetuses which really freaked me out. The nurse reminded me that this was indeed from the surgery and the tubes that had been inserted down my throat.

Another nurse came in to check my vitals and they realized that I was incredibly anemic and in serious need of another blood transfusion. I got the blood transfusion all night long on Saturday and of course suffering from horrible insomnia I got in all about 4 hours of sleep. The doctor did not wish to give me any ativan for sleeping because of my hallucinations. They weren't scary at all; just fun!

The infections seems to be clearing up but I am still getting low grade fevers at night. It frightened me that it had climbed to 100.8 but since the JPs are starting look clearer and bowel sounds are getting better. I am just starting to be able to burp but passing gas has not happened yet. Oh how I wished I could fart!!!)

Check out my bag of milk which I am getting nutrition intravenously (no pressure on my intestines). Also this morning I got extremely pissed at my nurse for just giving me a burning shot right in my tummy. We have been reserving my legs for this Anti-coagulant (twice per day) those tend to have the most fat for my body. My poor tummy and I shrieked in pain and in shock that she would do such a thing. Everyday that I have been in the hospital and having to get these shots, we had been doing them in my bony arms but they are all bruised and in pain so the legs are a must. I got not warning at all and I stayed mad at her all morning long and finally I called her in and told her that is no way to treat a patient such as me. I have been opened up 5 times, I'm drinking food intravenously, because my intestines just happen to be where she shot me. I accepted her apology and I feel she had to had to have learned a valuable lesson.

Yes, determined to get out of here and begin that new lease on life. OK, yes, I have had quite a few of those; but in all just very grateful to be alive.


I will update in a few days as I plan to get better with each passing day! My honey and my pets wish for me to be home taking care of them and I wish to be as well!)

5 comments:

l'optimiste said...

Oh CJ, you seem to be having so much pain and so many thoughtless people 'looking after' you! I am so shocked about the tummy shot and the hideous negatve doctor! Incredible. Thank goodness you have your own posotive energy, as it doesn't seem that the staff are giving you any.

I hope you are getting stronger every MINUTE. Can't wait for you to be out of there...

big cyber hug babe
x

Kia Taylor said...

CJ-I'm so glad that you are in control of your own health and are able to put those people in their place. You should be required to pass a personality test in addition to any medical boards needed to be a doctor.

Blowing in that tube thingy really does help get your body back on track, it even helps to regulate your temperature...Sending you many, many, hugs!!

By the way, you'll think this is funny...I had know idea that CJ and shopping Kharma wre one and the same...that facebook board moves so fast...not sure if I'll ever catch up!!

xoxo

nat said...

I have not had an epidural - and now, I know that I DON'T want one... Thank you as always, for teaching us something through your experience.

I am also glad that you explained to that nurse about having some common courtesy before giving you a shot! Again - always teaching! ;)

I want to smack that ob/gyne. What an ass.

Heal well CJ. Keep us updated on your progress, and on your reunion with Blue Belle!

Big hugs

Mischa said...

Hey you! Wishing you speedy recovery and kind, loving nurses. We miss you, and please let us know if we can care for Tonto and Bluebell for you and your husband in any way.

Your seat is still waiting for you when you return,

- mischa

ShoppingKharma said...

Awwwww! Thank you all for all of your warm vibes and healing thoughts. They seem to be working.

I have made sure that I never get any more bad apple nurses again. I called the Nurses Services and told them of the nurses I wish to never get again. They could tell I was very honest and sincere and that I don't wish to suffer through any more unnesssary suffering.

These last few days all of my nurses have been very sweet and loving to me. I'm not afraid to look any of them in the eye and for them to see my compassion and fight in my soul and in wanting nothing more than to get better and be home with my honey and pets!)

I am getting stronger with each passing day; the JP is no longer emitting juices (will 1 is but not much).

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Disclosure

My techniques and treatments work simply for me and may not produce the same results for others. Cancer is a very tricky disease in which it is very different in everyone it touches. No two cancers are the same just as we humans are not the same. What works for me may not work for others.

I love life and expect to live for as long as I can. I intend to use those treatments that do work for me which includes medicinal cannabis. I'm still alive with this disease over 7 years later because of this miracle plant and as long as I have my medicine available; I intend to survive many more years. I hope one day the Federal Government will eventually grow up and be led by true leaders who represent the people and not just coorporations; real people who live by the Golden Rule "treat others how you would want to be treated". I also hope the Government of the US can finally learn to admit that it has made a mortal mistake in making this life saving plant which is provided by GOD and does indeed have the ability to provide all of us with food, fuel, clothing, shelter, and medicine; a mistake that have made is that it is illegal. Yes, it was a mistake out of greed, ignorance, and racism that this miracle plant is illegal. This is a confirmed fact and we should all know and face it.

Cannabis is not at all harmful and in fact quite the opposite. Perhaps our economy can once again grow as it has in the turn of the century by making this life saving plant legal once again.

The contents of this blog including all images, (except images from third parties) and the name "Shopping Kharma - what comes around goes around" belong and copyrighted to C. Jayne Armstrong 2008-2010
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