Wow! It has been a whole week since I last updated and my apologies for the delay. I have been online for a few days but it has literally taken all of my energy to get the small things done (laundry, sometimes making lunches, putting small things away, changing sheets, etc.) The flooring is almost complete and I still have yet to download all the photos of all the excitement. My brother arrives tomorrow evening; technically Friday morning. (hint, hint, another break in updates)
The new floor is really amazing and that's all I can tell you right now. I was able to do a small amount of yoga last night and will try to will my intestines to work right. They just don't seem to know my asshole from my mouth from anything! I am still puking and shitting at the same time and that totally sucks!( I am making the most of it and have lagged at calling and leaving a message with the specialist. For some odd reason, I start thinking that I will improve just magically with out the specialist, surgeons and doctors. Call it hope or faith, and I still have tomorrow morning to make an appointment. My younger brother understands and just wants to hang with me here in CA!)
To be quite honest, I have been in so much pain (not all the time, but during part of the day and and part of the night / morning hours) these last couple of days and for a little while during the day, I can revert to some normalcy but it involves being stoned. I had a few days in between where I was OK but now it's kind of like I'm getting a little worse (time to call the specialist). As far as my natural medicine is concerned, I feel that it still calms my intestines but not right away. It takes a few minutes after the muscle spasms have had their way with me.
The first night, there was only about 4ft all the way from the living room to the dining room complete as Tonto used that small area to play on. It seemed his toys slid across that area much better than the concrete where the carpet was. It was time to get rid of that carpet and we will get rid of the rest eventually but this should be a good start.
I do know that this floor surface is much more fun to clean than the linoleum or the carpet. It just wasn't all that much fun using lots of elbow grease or vacuuming on the old flooring. I kept hoping that it would just mop itself but that never happens;?.
Oh and Tonto stayed with one of my sweet neighbors and tried to become friends with her kitties. It was a good experience for Tonto and getting used to other people. I think I will always be his favorite human; it took about 3 years for him to fully trust my honey. He still will not listen to him fully. My honey can call his name and keep calling it, but he won't fully listen; sometimes there will be a rare moment when he does but he mostly listens to me. I can call his name and most of the time I get a "here I am mom!" and he walks right up to me. There is always that chattiness about him.
I was able to take both of them to the vet today and wow! $450 later, and then it will also cost nearly $700 to have both of their teeth cleaned. I have to think about doing this eventually but I plan to seek another vet. It used to be less than $200 but now over $350 for each of them. Maybe my dentist can do it cheaper? Life costs money and these pets really help me through many of these troubled times. I have many happy moments where I can laugh at each of them or just smile. I guess they are kind of natural medicine for both myself and my husband.
I did get a kick out of the reactions from some of the vet techs as they talked about how awesome Tonto and Blue Belle are. I could hear the conversations in the back (I was in a small examining room) as they talked about each of them and how Tonto walked back into the office on his leash. He just wanted to be in the room with mommy and Blue Belle. The compliments on their names were the best. I have to admit that both of their names were well chosen for their personalities. The most important thing is that they are there for each other at a vet's appointment and it was as if I was a mom of two well behaved kids.
I had been scared that Tonto would puke all over my neighbor's home after his medications and trip to the vet. I was reading over the receipt and directions for his medications. I did see a CAUTION: that he may experience nausea from his shots. This was after I brought him over. I freaked a little bit worrying about this small thing. He had slobbed all over me on the way home and he even left a poopie stain on my pants from the fecal test I suppose. He has some Vaseline on his little butthole and it stained my pants a little when I took him to the car. It was on the way home that he had slobbed on me.
After I got home from taking both to the vet, I had to take a nap and then I got sick. I didn't think I would be able to make it to the Survivor's reception. I sure wanted to and I did everything I could to go. I did go and happy that I did! The Survivor's reception at the American Cancer Society in Campbell, CA. I met several survivor's and even found a potential team to join. I am still quite confused on that as I did sign up as an individual but we will see what happens. I got an email request and not sure how that went but what ever team I end up on; should be good! It's Relay for Life! I know now that I have 2 teams that wish to have me. On the team that I met this evening, I could get the shift I want (1am - 2am walking). I didn't eat anything while there; they did have the most amazing punch I have ever had.
I didn't bring Blue Belle to the event and I did have a small panic attack when I got there. I started crying and just couldn't stop. I immediately went into the bathroom; It was embarrassing to have to deal with. I think because of my nephostomy bag and the fact that I am going through these anxieties of not knowing what is going on with my intestines and to be at this event as a survivor; I was feeling like less of one (survivor) right then. Well the reasons for that is because this last surgery has been so hard on me to get stronger; sometimes I feel like I am not getting stronger and this is very frustrating for me. I didn't have my little buddy there to encourage me and cancer really is something that we need to find a cure for. I'm facing more chemo when I get stronger, but yes, I still have to take life one day at a time.
I met some really amazing women when I got there and I think that I may have been a survivor who has really been through the ringer quite a bit more than many. I also found out that I can indeed bring my service dog with me to walk and my husband and I are more than welcome to walk together with her. Right before I left I had told some of the women about my service dog and how I got there without her. I started crying again and those sweet ladies walked me right to my car. I think I'm just emotional from being scared for my life.
I got home OK and then went and picked up Tonto. My sweet neighbors came over to see my new floor and then I immediate got sick. Actually one neighbor came by right before I left for the Survivor Benefit? and then my neighbor who was watching Tonto came over (just for a few moments). Then after she left; I raced upstairs and did my usual ritual (Sitz Baths one after another = 5). I've been puking more so than number 2 but the spasms are very, very real. Sometimes it feels like my heart is going to come right up my esophagus. No, it's not at all pleasant, but I get through it each time. I will be calling the internist tomorrow morning with out a doubt (reminder on my iPhone). I hope to provide more updates but I do plan on being OK. Worrying will not do me any good, just prayers and good positive thoughts!) Hint...Hint...
3 comments:
hey sweetie - I hope the family visit goes well. And I hope the specialist can help you. Sounds like you are really battling it at the moment.
Meeting other Survivors is pretty emotional for anyone. You did well just to get there. You must be exhausted. We had a Survivors lunch last Sunday [see blog] and even that was quite something. So happy you went and you'll be at the Relay with Blue Belle! That'll be fun. They're lucky to have you.
Looking forward to seeing pics of the floor and Tonto and Blue Belle :o)
Thinking of you, and I am really glad you posted. Wishing you good health and healing.
x
As a new reader I admire your strength to post your struggles.
It all certainly puts ones life in perspective.
Prayers.
xx
CJ - see here:
http://sandhysown.blogspot.com/2009/06/zombie-chicken-award.html
hope you enjoy! :o)
x
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