Here is Mr. Tonto enjoying a nice walk outside at night. Sometimes I am able to get up and take him with my honey. Sometimes he will cry at the door hinting that he wants to go outside. Lately it's been hard to even be further than 10ft from the closest bathroom and of course walking him is not an option at that time. He has been crying quite a bit lately and hinting that he would like to walk outside. He still runs away from me when I bring out the leash (maybe he enjoys being chased; he sure looks like he enjoys it way too much) from the leash expecting that I will let him out like Blue Belle with out the leash but there is no way to trust him. He would get distracted with just a bug or a squirrel and just tear off running for something. He doesn't listen all that well so it's just safer to just have him on his leash. Sometimes he will get a good running start enough to run up about 3-4 ft up one of our trees in the complex. He looks over at me or my honey just like a cute Koala Bear.
Tonto worries about me sometimes and likes to sit in the chair next to the couch so that he can be close to me. I know he can tell when I'm in pain. Well this weekend, I spent most of my time in bed/couch and in horrible pain. I emailed my doctor this weekend thinking that he might be on duty this weekend at the hospital but I didn't hear back from him until yesterday morning. My nurse came by around noonish to change my picc line dressing and to take blood tests and even a urine test since I have been in such horrid pain peeing out glass out of my pee pee hole! Youchhhhhh! Even after peeing, I would drag myself back to the couch and just lay there in terrible pain. It seemed that the pain just didn't stop after peeing; it was still quite uncomfortable. My legs would shake uncontrollably as the glass pieces make it out of my pee hole!( Oh GOD did it hurts!( It hurts just to walk around. Saturday was my better day; but the infection was definately coming on. By Sunday it was full blown pain and misery. I spent most of the day sleeping away and being drugged up on pain medication. I hate doing that but sometimes the pain can be too overwhelming for me. I really wanted to ride my bike but I was hurting way too bad down there to even sit on the seat.
The tests should come back tomorrow or so (takes about 48 hours) so that we can start the right kind of antibiotic. I'm praying that I don't need to go into the hospital and hopefully can receive medication at home. I'm on Cipro right now and also taking an over the counter medication called AZO that has Phenazopyridine as one of the main ingredients that should help give me some relief. Having the stint in my ureter makes me super prone to these types of kidney, bladder, and urinary infections. In fact I think I might even be prone to all types of infections or so it seems. I am also fighting the side effects of these drugs which also includes the worst kind of diahrrea. It's just not that pleasant especially being hooked up to my feeding tube (I have to carry that heavy backpack everywhere with me and that includes running my ass to the bathroom ASAP!) At least I am still fighting this as strong as possible. The kind things others do for me overshadows these types of problems. My vaporizer has been helping with much of this pain and helping me keep fluids down. I still have the horrid heartburn after eating anything; even chicken noodle soup with out the chicken and noodles; so it's just broth. I wished so much I could just have piece of pizza, some thai food, even south indian food. Oh how I miss just the simple things to eat. Sushi is something I may never get to eat again. My intestines are a mess; being cut open 7 times just might do it for most. I'm just not giving up and still believe in a miracle that I will be able to eat one day soon.
This weekend my honey and I got to watch "Date Night" with Steve Carrell and Tina Fey. I laughed nearly all the way through this movie and needed a good laugh but my honey thought it was dumb. Maybe it was because I had smoked a joint prior and during the movie. Either way, I needed a good laugh and to forget just for an hour and half that I suffer as I do. I can just sit there watch a movie and look over at my sweet knight in shining armour. I am always amazed how at how handsome he is and that he still loves me no matter what; no matter how disgusting my side effects and body gets; he still loves me. I'm amazed all the time all that he does for me and am thankful. I'm also very thankful for the friends that I have and those who try to help me out. I hope to be around for a long time; at least long enough to write a good book that will hopefully take care of my sweetie for the rest of his life.
Peace and Love to all of you!