Well I did get out of the hospital on Sunday and it has not been a very easy week. I promise to post photos and/or video when I can. Following doctor's and home nurse's orders and staying in bed; first time on internet in over a week.
Since spinal fluid was involved; I needed to stay in bed and receive fluids; we are hoping I gain more weight in the coming week and perhaps I will get stronger; it's hard but we are coping and doing our best as we all should do.
It hasn't been easy knowing that I was addicted severely to those damned Fentanyl patches (250mg) changed every 72 hours; so that wasn't so easy smacking myself silly; getting horrid, shakes and not to mention horrid headaches when standing; then came the caffeine, no-doze to treat the deal with my spinal fluid and my horrid addiction to those fucking patches; I have to say Fuck here!
But I am a cancer patient who technically has cancer still eating my body alive and this device which I feel they could have put in my boob rather than perhaps above my poor bladder; at least I could have 1 nifty boob to place into a bra? I hate having to be treated for horrid pain but it's the only way right now until someone thinks of better things; like Why Cancer? I have 10 staples to get out Monday on my tattoo on my back; and about 20ish or so on my tummy where this round device lies?
Anyway; gots to go and hope to update again soon!) Still got that sense of humor!) Peace and Love!
WARNING: This video may be disturbing to some viewers; Viewer discretion is advised since I refuse to edit out all that I am facing in this battle for my life. Hope you all enjoy; it's as real as it gets!)
WARNING: This video may be disturbing to some viewers; Viewer discretion is advised since I refuse to edit out all that I am facing in this battle for my life. Hope you all enjoy; it's as real as it gets!)
10 comments:
Oh honey. What an awful week. I hope things ease somewhat for you. You're in my prayers and thoughts.
Love ya,
Deb
You are my hero and a true inspiration. Hang in there!
Karen
What an inspiration you are! I admire your amazing strength. Sending positive thoughts your way for a quick recovery from this latest surgery.
Marilyn
Withdrawal on TOP of the pain? Oh CJ - I feel for you. I hope the pain pump takes care of your pain, and that everything else settles down. Please heal well, and don't try to do too much too fast! Hugs
May god bless you. Padre Pio please ease her pain, and help her suffering as she does battle with cancer.
You have truely inspired myself as a caretaker, and my best friend who is also going through ovarian cancer.
Hope you are feeling better. I have thought of you even though I haven't commented lately. I've been doing like paying webwork and by the time I get through with that I don't do any more on computer....
I hope your pain is better, please know so many are thinking of you.
I hope you aren't being hard on yourself for what you call being "addicted" to the pain patches. It sounds like your body built up a tolerance to them and you are having withdrawal symptoms. Those are two elements of addiction, but please do not take that to mean you are an addict! You were taking them under medical supervision for the condition prescribed. Tolerance and withdrawal alone do not make an addiction. I do not feel that cancer patients should have to worry about being addicted. Where you are and an addict are totally different circumstances. Your body responded appropriately to a chemical just the way it is meant to respond. That is all. You were doing absolutely the right thing in using the medication, and now you have a different alternative that will hopefully be even better for managing your pain.
Good for you for doing the bed rest! That kind of thing is difficult, but again you're doing the right thing. Even though it's a rough path, sounds like you are making very appropriate decisions for your health. Kudos!
Love, hugs, & healing to you.
Karen
Anne Delina...I pray to Padre Pio for CJ also!
CJ, keep the faith and know that others truly care about and love you so very much. I am in your corner and want a total knockout of the beast.
You are in my prayers every night. I pray that you do not have to suffer so and that your pain lessens. I pray the cancer stabilizes.
The person who told you you are NOT an addict is dead on! What wonderful friends you have! Do not feel guilty for the medication you absolutely need to give you quality of life.
Keep fighting! Fight fight fight!
Tons of love and hugs,
MaryAnn
I hope this new little device offers you some relief so that you can spend your time thinking about wonderful things, and not dealing with the pain. Love and peace to you!
Precious Jayne,
I hope you are recovering and progressing every day. I just wanted you to know I'm still thinking and praying for you.
Love You,
Deb
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