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I guess it was about Tuesday the day before when I got a phone call that I needed to go in the next day (Wednesday) to get my pain pump refilled; well we've been getting the most amazing rain storm and the temperature has been very cold; perfect I would say if only I had the strength and meat on my bones to sustain me enough to go snowboarding; OMG! would that be so freaking awesome! so yes all this beautiful wonderful rain has been killing me; I've been dreaming of snowboarding quite a bit of course. I hope all the people out there are having a blast! Anyway, I told my honey immediately that we needed to fill my pain pump and I was kind of worried that this might kink up some plans, but no he made it all work!). He was on the ball and how very proud of him I am. for that; I don't think I could ever expect any less of him. I feel that every woman fighting this monster called cancer needs a Jimmy! The world would be so much better! I hope there are many other women out there who also have their Jimmy's because suffering with this disease alone is nearly impossible; there really are lots of heroes out there fighting cancer along side us that we need not leave out or forget about and I know I'm not the only one!
I'm actually in awww of my knight in shining armor as tears are flowing down my face when I say this so proudly; he really had the day so well planned. I could so nothing but smile and giggle at the cute things he does for me. It's so sweet!) He had called a close friend of ours to come pick us up and drop us off at the convenient front entrance where he could wheel me up to the 4th floor. I was actually very sick on Wednesday and I was not at all feeling good. I had my puke bag ready and we we had been panicking some that I might end up in ER if I couldn't get the puking down; we have been trying everything suggested for my nausea and sometimes nothing works and then I just grabbed a bud and put it in my water pipe and smoked it (OK this was before we left for the hospital; just like a chemo brain
My honey was planning to find a wheelchair in order to wheel me up to the 4th floor where he could first meet up with his point of contract (I can't use names and must keep anonymity for these helpful souls at the hospital; I love them all so dearly for what they do for us and would never endanger them for helping me survive this disease those extra days. I'm always grateful for more time and I'm getting it right now. Anyway, my honey waited first with me until his point of contract met us with us so that he could drop me off to the pharmacy to pick up my heavy duty pain medications which I was running low on. Actually he sat and waited with me until his point of contact (an incredible male nurse supervisor?) who always manages my pain pump; it really is a new thing and many know nothing about my weird internal contraption so it's important to have all the right people there when my pain pump is ready to be serviced like this. I only waited maybe 5 minutes, when his point of contact arrived to take me downstairs to where I would get my pump refilled and even turned up some so that I wouldn't have to endure much more of the Dilaudid.
In a strange irony I was not yet thinking of ditching using them as I thought more and more about the horrid tastes I have had to put up with us with further and makes me gag just thinking about it? I've been getting so sick and tired of having to deal with killing the horrid taste of the Methadone
Medical marijuana
Well the last couple of months of being on hospice care
We were practically in and out of the hospital with everything we needed in less than 20-25 minutes! He even refilled prescriptions and most importantly; we got my intrathecal pain pump (huge Skoal Can
on my Tummy) refilled. My honey helped me into a wheelchair and then he wheeled me right down the hall to the front waiting area where our ride was waiting. He helped me into the car from the wheelchair and we were on our way; we made it home in no time. I know I should just take that shit for granted; but I just can't; I appreciate all that he is to me and am grateful for such a wonderful man.
I was a little panic stricken over how I would manage my pain control since I was not down with taking oral Methadone
(it has the most putrid taste ever and I can't get rid of that taste in my mouth unless I eat pickle which are overly acidic in my poor little unworking tummy. My tummy is basically a general holding area for puke because if anything does make it to my tummy; it's right to the puke bowl in about 5-15 minutes. It sucks and boy does it get tiring I'm sure of listening to that nastiness.
I was a little panic stricken over how I would manage my pain control since I was not down with taking oral Methadone
My honey has another friend who is also in my similar situation; he too has a sweet wife whom he takes very good care of and he loves her dearly; she needs his help in her life and its so sad to think of her loosing him and I hope and pray she has many more family and friends who can help take care of her; yes there are always those in far worse situations than you ever thought that you would be in. In life you can either take the position of a victim (which is quite annoying I must say! = just my humble opinion) or you can try to conquer what you can; do your best! Work with your partner which I love doing each day! He makes my life the best! He rules! and it does prove that you really do need lots of love to get through a Cancer Diagnosis
; hell we all need it in life.
Alright back to my awesome husband. We are talking about our friends; they are dealing with what they have to deal with as well. His friend was also not down with taking either of those oral nasty liquid medications; they had burned his throat to no end and were more than likely doing the same for me. My throat always burns and I always have the worst heart burn every. He too was prescribed the exact same pain medications that I have prescribed for me. You can't quit cold turkey on the Methadone
because I think it takes like 24 hours for you to relapse and to seriously have the worst pain ever and then have to deal with trying to catch up on the pain you could possibly suffer from being eaten alive by cancer. I was facing having to deal with severe cramping from the cancer pain and scar tissues from ALL those surgeries that I have had.
I have also had enough of the Methadone
and of course that horrid, horrid, taste; oh and freaking out when the actual medicine makes it on top of taste bud; then panicking to try hard to stuff a pickle in my mouth fast enough to in order to get rid of that taste; ewww that taste; it makes me yack just thinking about it!( Oh it doesn't even stop there, I'm also puking up pickles which really didn't feel so good coming back up and they do have this funny taste when they come back up. I almost felt like a cow chewing cudd and regurgitating?
I just could not stomach any more of that Methadone
. There was no way in hell I was going to take it again; so I refused and was now going to take my chances on quitting cold turkey. I couldn't put that shit in my mouth again. My honey called the hospice nurse the following day to let her know of my stubborn ways; that's OK to be that way; you can only take so much in life. I actually couldn't stomach either one of them. The Dilaudid
is so incredibly overly sweet and chemically tasting like cold medicine
? It's sweet in a nauseating kind of way! Imagine having to take cold medicine every single day; every hour on the hour sometimes; of course I couldn't do that; 8 doses has been my max I believe. I have had lots of painful days to deal with; that's makes it hard for me sometimes to do anything but veg out on the couch. Despite all this; one man makes me more than happy to keep on trugging through this! Oh how I love him is such an understatement!
Anyway, my hospice nurse came up with the most brilliant solution ever; actually my honey figured out the perfect way to administer my nasty ass Methadone
; through my G-Tube! Yeah! I didn't know we could even do this but he can give it to me in less than 1 minute. Since my G-Tube has been mostly for decompression I have to sit still for about 20 minutes and try my best not to drink anything. He gets a syringe and unscrews part of my G-Tube and then screws it back in after he gives me my prescribed dose and then he amazingly uses another large syringe with just enough water to wash it into my tummy and the rest has been history! I'm not suffering in nearly the pain I had been and only wish I had been doing this all along! Wish we could do the same for the Dilaudid? We will see. For now I'm happy see more of these wonderful rainy days where I can day dream about our fun adventures that we have had together! and we have had a lot!
I also feel that music can help so many of us to heal. Just turning off the TV and listening to music can improve your mood significantly. Watching some of this worthless crap on TV can make you dummer, maybe a little psychotic, some even wanting to murder others; how could anyone put shit on TV to make people hate one another? How can they live with themselves selling their soul like that?; especially many of those news programs; don't ever believe everything you hear and always question the source. It sucks that more and more dishonesty is coming out in journalism? It just takes a buck to change a fact? That's just the way it is. Look at all those insurance commercials; we aren't paying for more coverage; we are paying for total annoyance ;all those worthless, monotonous ads on TV that are intrusive, loud, and totally obnoxious. Turn that shit off and Listen to some good music instead of lies! Rock out!
Peace and Love to all of you!
Alright back to my awesome husband. We are talking about our friends; they are dealing with what they have to deal with as well. His friend was also not down with taking either of those oral nasty liquid medications; they had burned his throat to no end and were more than likely doing the same for me. My throat always burns and I always have the worst heart burn every. He too was prescribed the exact same pain medications that I have prescribed for me. You can't quit cold turkey on the Methadone
I have also had enough of the Methadone
I just could not stomach any more of that Methadone
Anyway, my hospice nurse came up with the most brilliant solution ever; actually my honey figured out the perfect way to administer my nasty ass Methadone
I also feel that music can help so many of us to heal. Just turning off the TV and listening to music can improve your mood significantly. Watching some of this worthless crap on TV can make you dummer, maybe a little psychotic, some even wanting to murder others; how could anyone put shit on TV to make people hate one another? How can they live with themselves selling their soul like that?; especially many of those news programs; don't ever believe everything you hear and always question the source. It sucks that more and more dishonesty is coming out in journalism? It just takes a buck to change a fact? That's just the way it is. Look at all those insurance commercials; we aren't paying for more coverage; we are paying for total annoyance ;all those worthless, monotonous ads on TV that are intrusive, loud, and totally obnoxious. Turn that shit off and Listen to some good music instead of lies! Rock out!
Peace and Love to all of you!